Dear visitor, a warm welcome to you. It's a pleasure to have you look at our web site and learn about the Dutch Angelman Syndrome Parent Organisation, in short: vASN. The vASN has been around for years, we were founded in 1985 as the Prader-Willi Organisation and in 1991 the Angelman Syndrome community was added, resulting in the PWAV. In January 2016, the Prader-Willi and Angelman groups split-up, divided their assets, and the vASN was established to support the Angelman Syndrome patients, parents, families, medical professionals and others who have an interest in this rare disorder.

 

We are part of the Angelman Syndrome Alliance and as such we support and visit the bi-annual conferences to exchange know-how and assets with the other members. Also, we are in strong co-operation with the ENCORE/AS team at the Erasmus Medical Center in Rotterdam, The Netherlands. We look forward to hear from you, so if you have something to tell or ask us, do not hesitate to send an email to info[at]angelmansyndroom.nl.

 

Currently, this web site is in Dutch, but we have plans to offer the content in English too. So keep in touch!

Board of the vASN.